Referrals

 
Referrals

Who can be reffered to Rainbow Place?


  • Children and young people who have a serious life-limiting or life-threatening condition (Referral form 1)
  • Children and young people affected by the serious illness of a close family member who is under the care of Hospice Waikato adult services. (Referral form 2)

    What is a life-limiting or life-threatening condition?


    A life-limiting or life-threatening condition is an illness where the child or young person is either not expected to live far into adulthood, or their condition may result in premature death.
    This may include;
    • Life-threatening conditions for which curative treatment may not be feasible, for example cancer. We support children who are going through treatment e.g. Radiotherapy/Chemotherapy with the aim of a cure. We journey with you offering support until you no longer need it and will then discharge you.
    • Irreversible organ failure
    • Conditions where premature death is inevitable, for example cystic fibrosis, Duchenne muscular dystrophy.
    • Progressive conditions without curative treatment options, for example Battens Disease.
    • Irreversible, but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death, for example severe cerebral palsy, severe brain injury.

    Who can make a referral?


    • Healthcare professionals
    • Families, friends and relatives

    Support is available at Rainbow Place, in the home or in other community settings, e.g. schools, marae.

    Referral Criteria


    Four broad groups of life-threatening and life-limiting conditions may be delineated. Categorisation is not easy and the examples used are not exclusive. Diagnosis is only part of the process; the spectrum of disease, severity of disease and subsequent complications and the needs of and impact on the child and family need to be taken into account.

    Category 1
    Life-threatening conditions for which curative treatment may be feasible but can fail. Where access to palliative care services may be necessary when treatment fails or during an acute crisis, irrespective of the duration of that threat to life. On treatment there is no longer a need for palliative care services. Examples: cancer, irreversible organ failures of heart, liver, kidney.
    Category 2
    Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal activities. Examples: cystic fibrosis, Duchenne muscular dystrophy.
    Category 3
    Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years. Examples: Batten disease, mucopolysaccharidoses.
    Category 4
    Irreversible but non-progressive conditions causing severe disability leading to susceptibility to health complications and likelihood of premature death. Examples: severe cerebral palsy, multiple disabilities such as following brain or spinal cord injury, complex health care needs and a high risk of an unpredictable life-threatening event or episode.

    Related Documents

     

    Referral to Rainbow Place does not mean automatic acceptance into Rainbow Place services. Our services are based on an assessment of need. Not all services are available in all areas.

    Click here to be taken to our Hospice Waikato website.

     
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